all right kids…. you know i never ask for ANYTHING.. but this?? i will beg for… Please help secure Kylies future by helping fund the research that has already saved her life MANY times over. Support Joe Creiler. Support Kylie..Support all the families that will someday hear “Your child has DBA”…..
anmd yes, i promise to update soon.. its just been impossible for me to find time to sit and write ! Believe you me, its more frustrating for ME then YOU! Its MY therapy!
(and ALL know how desparately I need therapy! )

Dear DBA Families and Friends, Many times throughout our DBA journey, our lives intertwine with amazing people… sometimes heroes. It is our pleasure to introduce you to a true DBA hero. Joe Crelier from Albuquerque, NM is a regular blood donor, who recently learned about DBA. Joe was so touched by our families that he has decided to go the extra 140.6 miles for us!! In honor of our patients and families, Joe will be participating in the Janus Charity Challenge in. Our “Ironman” will swim 2.4 miles, bike 112 miles and run 26.2 miles, dedicating each step to our DBA families. Joe sets his ambitions high and he has also set a goal of raising $100,000.00 for the Diamond Blackfan Anemia Foundation to continue our mission of supporting our families and funding important DBA research. We have been amazed and truly humbled by Joe’s generosity, determination, kindness, and concern. We are reaching out for your assistance. Help support Joe in his selfless and inspiring feat. Please visit our website for a link to Joe’s page, or access it directly at Donations can be made through our website, Joe’s page, or by mailing a check directly to the DBAF. Please indicate that your donation is in support of Joe. Please pass this information on to your families and friends and be a part of this remarkable accomplishment. Joe will be training hard for the next nine months and I ask that you help to keep him motivated and inspired. Let’s show him the DBA community around the world appreciates his hard work!